The Longest Day is a team event to raise funds and awareness for the Alzheimer’s Association. It is held annually
on the summer solstice, the duration of this sunrise to sunset event symbolizes the challenging journey of those
living with the disease and their caregivers., We have created this opportunity for you- putting our passion to worktraining
and educating professionals and family caregivers and bringing together resources- our CARE
PARTNERS to share this day with us. Everything is FREE but we ask that you make a donation- Every dollar that
is raised, benefits those affected by Alzheimer’s disease in our community. There is an event every hour. Come
and go as you please….stay for lunch…stay an hour or join us the whole day…it’s totally up to you!!! All activities
will take place at our offices and conference room on the 2nd floor of the York County Economic Alliance Building
at 140 Roosevelt Ave in York. Space is limited so please RSVP and let us know what you want to attend by
June 18 – 717-843-1504 or email@example.com or LIKE us on FACEBOOK and tell us there!
Come out and see our expanded training/meeting area-The RESOURCE CENTER at GOOD NEWS !
7am-8 Morning Devotions/Spirituality in Dementia Care
8:15-9:15 Brain Fitness/Yogurt Bar/Breakfast
9:30-10:30 Technology and Brain Fitness
10:45-11:45 Ageless Wisdom-Aging Sensitivity
12-1 Lunch-Soup and Salad Bar/Open House
1:15-2:15 Sexuality and Dementia Care
2:30-3:30 Engaging People with Dementia to Reduce Behaviors
3:45-4:45 Diagnosis Dementia – Speaker will be Attorney Jeffrey Bellomo
5-6 The Supper Club
6:15-7:15 Abraham Lincoln Talk
7:30 -9pm Ice Cream Social
Pampering the Caregiver
Finally, after many years of pressure from patient advocate groups, Medicare will begin to reimburse doctors for the time needed to test patients with cognitive impairments and offer information about care planning.
Many would think primary care physicians are already doing this, but that’s not always so.
Santa Cruz Sentinel’s recent article, “Diagnosing Alzheimer’s: Medicare now pays doctors to stop and assess memory loss,” reports that more than 5 million Americans are living with Alzheimer’s, and as many as 16 million will have the disease in 2050. The cost of caring for those with the disease and other types of dementia is skyrocketing. In the U.S., it’s estimated to total $236 billion in 2016 and is anticipated to increase to $1.1 trillion by 2050.
However, many people are unaware that they are afflicted with the disease: only about 50% of Americans are diagnosed. Experts contend that many doctors don’t take the time required to test for Alzheimer’s disease. However, the new Medicare billing code will provide more incentive for primary care doctors to take the time for more evaluation and care-coordination.
An early and documented diagnosis—along with access to care planning services—gives Alzheimer’s patients better outcomes. It’s even possible to see signs of cognitive problems before the person realizes it themselves. However, research thus far, suggests that medications will only be effective in the early stages of the disease, when the symptoms are the mildest. Therefore, primary care doctors must look for those mild cognitive problems.
However, many physicians aren’t equipped to help their patients take advantage of the new Medicare rule. The issue is that more front-line physicians typically aren’t trained in this area. They first need to understand how to assess these patients before referring them to neurologists or to develop care plans.
Many groups are stepping forward to help educate family physicians about Medicare’s new coverage to support them in providing this care.
Reference: Santa Cruz Sentinel (January 7, 2017) “Diagnosing Alzheimer’s: Medicare now pays doctors to stop and assess memory loss”
Kim first saw the signs, but chalked it up to the normal aging process. However, once she suspected that her husband had a serious problem—more than just senior moments—she needed to get a diagnosis. Glen Campbell, now 79, was diagnosed with Alzheimer's in 2011. He performed the final show of his farewell tour in late 2012.
"Getting the diagnosis helped me a lot," Kim Campbell said in a recent telephone interview with the Lexington Herald-Leader, in "Wife of Glen Campbell takes on role of Alzheimer's advocate, speaker." She was candid with the reporter, admitting, "Before the diagnosis, I would get frustrated with him, and irritated and annoyed."
Alzheimer's impacts about half of all people over the age of 85 and kills nearly 100,000 Americans each year. It's named for the German doctor Alois Alzheimer, who discovered the distinctive tangles and plaques of the disease in the brain of a female dementia patient in 1906.
Kim Campbell said the disease needs to be approached from a perspective of examining what the patient still can do versus what he or she can't. What can caregivers do to give them comfort and joy?
Glen Campbell now resides in a memory care unit. Kim Campbell said she tried one last time to have her husband at home — "I missed him so much, and I thought, I've just got to try it one more time. (But) I couldn't bathe him without a fight, or change his clothes. Glen's a big man, and he was not easy."
Kim Campbell said she speaks out about Alzheimer's disease to help families because Alzheimer's "is definitely the most feared disease. You lose control of your life. There are identity issues and autonomy issues."
Campbell also suggests that caregivers give themselves breaks and take care of themselves because the stress for caregivers is enormous.
She also emphasized that estate planning is very important and noted the need for advance health care directives.
Reference: Lexington (KY) Herald Leader (February 24, 2016) "Wife of Glen Campbell takes on role of Alzheimer's advocate, speaker"